We have a special treat for you today! Erin interviewed Renee Hetzler, PT, DPT, NCS and Bernadette Cummings, OTR/L, ATP who both specialize in working with people with ALS to have a conversation about caring for individuals with ALS. There are do’s and don’ts when working with this population and we wanted to bring it to you! If you’re someone who doesn’t see this population very often and you want to know what to focus on, the timeline of events you should be tuned into and how to prioritize your plan of care, this is the episode for you!
Some of the topics discussed include:
The types of ALS, initial symptoms, warnings signs and timeline
Outcome measures and assessments to consider
How to be prepared based on the timeline
How to have conversations with the patients and their families
Favorite equipment recommendations from PT and OT
Exercise recommendations
Resources for individuals with ALS and their families
ALS Association: https://www.als.org/
Team Gleason: https://teamgleason.org/
Muscular Dystrophy Association: https://www.mda.org/
I AM ALS: https://iamals.org/
Compassionate Care ALS: https://ccals.org/
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https://www.performancehealth.com/air-soft-resting-hand-splint
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https://www.amazon.com/DRIVE-Rollator-Walker-Removable-Storage/dp/B07TCTBLD9/ref=cm_cr_arp_d_product_top?ie=UTF8
https://kineticresearch.com/product/the-noodle-classic-afo/
https://www.amazon.com/Medline-Lightweight-Transport-Wheelchair-Handbrakes/dp/B007WA1ZG4
And no need to take notes, we’ve got an info sheet with everything that was covered for you to download HERE
