In this installment of the Future Grind podcast host Ryan O’Shea sits down with well known data liberation advocate Hugo Campos. Hugo lives with an Implantable Cardioverter Defibrillator, or ICD, which monitors his heart and helps keep him alive. However, the lack of transparency coming from the medical community about his device and the data it collects has lead Hugo on decade plus mission to advocate for data liberation and patient engagement. Hugo has been honored as a White House Champion of Change for Precision Medicine by President Barack Obama, and works with Stanford Medicine X, which is Stanford's premier program on emerging technology and medicine, focusing on patient-centered innovation. Hugo has also shared his story in a TEDx talk at Harvard in 2011.
Today Hugo is a participant ambassador for the All of Us Research Program, an initiative from the NIH focused on building a diverse health database featuring over 1 million participants which will drive future scientific and medical breakthroughs.
They discuss the value of data, inherent issues in the medical industry, the importance of autonomy, opportunities presented by the All of Us program and much more.
Show Notes: https://futuregrind.org
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