In this episode I talk with Heather Joy Magdelano about her journey as a mother to two children with a rare genetic syndrome called Wolf-Hirschhorn. We get real about the complexity of emotions parents with kids with disabilities experience, along with caregiver’s burnout, how to avoid it + finding joy in deep acceptance. We cover G-Tube feeding to the fear of outliving your own child, along with flower essences + alternative therapies for kids with disabilities.